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nationalhealthmuseum.org
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February 19, 2007
Hello!
Whether they have made a great discovery, or just an
observation about daily life, there are times when people
want to communicate.
"If so, your brain translates the idea into a sequence of
words. The words are translated into vibrations that depart
from your mouth, sail long distances through the air, and
land on my eardrum. These vibrations are turned back into
words, and then into meaningful sentences and ideas. My
brain also picks up other non-verbal language, such as your
facial expression and tone of voice. Meanwhile, I figure
out any 'hidden agenda' or 'subtext' when you said those
words. All these elements mix together to come up with an
accurate understanding of what your 'self' meant to
communicate to my 'self.' It's amazing that this process
works at all. It is not really amazing that some people
have trouble with some aspect of it. Those people whose
primary difficulty is understanding the literal meaning of
words are considered to have 'traditional' speech and
language disabilities. Those people who have difficulty in
the non-verbal parts of communication (including their
desire and ability to use language in a social context) may
be considered to have an Autistic Spectrum Disorder (ASD)."
http://pediatricneurology.com/autism.htm#Introduction
Some people don't understand the words: how to say them,
how to use them, or how to understand them. Others don't
understand the levels of communication that go beyond the
words. Still others struggle with both.
"'Autism' means a developmental disability significantly
affecting verbal and non-verbal communication and social
interaction, generally evident before age three, that
adversely affects educational performance. Other
characteristics often associated with autism are engagement
in repetitive activities and stereotyped movements,
resistance to environmental change or change in daily
routines, and unusual responses to sensory experiences."
http://www.medicine.uiowa.edu/autismservices/autism_definition.htm
There may be students in your school with autism. Depending
on the severity of the disability, they may or may not have
classes with you.
Not only can those with autism have a difficult time
understanding the communication styles of others, it can
also be difficult for others to understand the way in which
a person with autism communicates and/ or interacts.
"Because their brains process information differently,
teens with autism may not act like other people you know
(or each other, because the severity of symptoms of autism
varies from person to person). They can have trouble
talking and sometimes communicate with gestures instead of
words. Some spend a lot of time alone, don't make friends
easily (and may not act like they want to), and don't react
to social cues like someone smiling or scowling at them.
They often do not make eye contact when you are talking to
them. ... Some teens with autism are passive and withdrawn,
whereas others are overactive and may have tantrums or act
aggressively when they are frustrated ... Because they
don't have the ability to express emotions like anger and
frustration in more acceptable ways, teens with autism may
express themselves in ways that seem inappropriate. ... One
common misconception is that people with autism don't feel
or show emotion. Although they can feel affection, they
often don't express it the same way others do. To an
outsider, this can come across as being cold or
unemotional.
http://www.kidshealth.org/teen/school_jobs/school/autism.html
While those with Autism often have difficulties with both
non-verbal and verbal communication, those with Asperger's
syndrome are more likely to struggle with the non-verbal.
"Asperger’s syndrome [AS] is a developmental disorder in
which people have severe difficulties understanding how to
interact socially. People with Asperger's syndrome have
some traits of autism, especially weak social skills and a
preference for sameness and routine. But unlike those with
autism, children with Asperger's syndrome usually start to
talk around 2 years of age (the age at which speech
normally develops). They have normal to above-normal
intelligence. Both conditions belong to the group of
disorders called pervasive developmental disorders."
http://www.cigna.com/healthinfo/zq1008.html
While most people have heard about autism, many may not
have heard about Asperger's syndrome.
"Asperger Syndrome or (Asperger's Disorder) is a
neurobiological disorder named for a Viennese physician,
Hans Asperger, who in 1944 published a paper which
described a pattern of behaviors in several young boys who
had normal intelligence and language development, but who
also exhibited autistic-like behaviors and marked
deficiencies in social and communication skills. In spite
of the publication of his paper in the 1940's, it wasn't
until 1994 that Asperger Syndrome was added to the DSM IV
[Diagnostic and Statistical Manual of Mental Disorders
(DSM) is the standard classification of mental disorders
used by mental health professionals in the United States]
and only in the past few years has AS been recognized by
professionals and parents."
http://www.udel.edu/bkirby/asperger/aswhatisit.html
Since it was not until recently that AS began to get more
attention from medical professionals and parents, many
people have gone through life undiagnosed. There may be
those with AS in your school who have struggled for years
and never understood why.
"Individuals with AS can exhibit a variety of
characteristics and the disorder can range from mild to
severe. Persons with AS show marked deficiencies in social
skills, have difficulties with transitions or changes and
prefer sameness. They often have obsessive routines and may
be preoccupied with a particular subject of interest. They
have a great deal of difficulty reading nonverbal cues
(body language) and very often the individual with AS has
difficulty determining proper body space. Often overly
sensitive to sounds, tastes, smells, and sights, the person
with AS may prefer soft clothing, certain foods, and be
bothered by sounds or lights no one else seems to hear or
see. It's important to remember that the person with AS
perceives the world very differently. Therefore, many
behaviors that seem odd or unusual are due to those
neurological differences and not the result of intentional
rudeness or bad behavior...."
http://www.udel.edu/bkirby/asperger/aswhatisit.html
As more people become aware of AS, more and more children
(and adults) are being diagnosed. Those previously
misdiagnosed, or undiagnosed, are beginning to get a more
accurate assessment of their symptoms. That said, there are
still a lot of questions.
"At this time there is a great deal of debate as to exactly
where AS fits. It is presently described as an autism
spectrum disorder and Uta Frith, in her book Autism and Asperger's Syndrome, described AS individuals as "having a
dash of Autism". Some professionals feel that AS is the
same as High Functioning Autism [HFA], while others feel
that it is better described as a Nonverbal Learning
Disability [NLD]. AS shares many of the characteristics of
PDD-NOS (Pervasive Developmental Disorder; Not otherwise
specified), HFA, and NLD and because it was virtually
unknown until a few years ago, many individuals either
received an incorrect diagnosis or remained undiagnosed.
For example, it is not at all uncommon for a child who was
initially diagnosed with ADD or ADHD be re-diagnosed with
AS. In addition, some individuals who were originally
diagnosed with HFA or PDD-NOS are now being given the AS
diagnosis and many individuals have a dual diagnosis of
Asperger Syndrome and High Functioning Autism."
http://www.udel.edu/bkirby/asperger/aswhatisit.html
There may be people you know, or students in your classes,
with an AS diagnosis. In many cases, you may never know
unless the person chooses to tell you. While younger
children may not understand -- or be aware of -- what the
eventual diagnosis really means, teens and tweens (and
adults) are often faced with different challenges once it
has been determined that they have AS.
"Asperger syndrome is quite a tricky thing to explain. Your
friends and even your teacher may never have heard of it.
This may mean that you and your family will have to inform
the people you meet of your condition, and help them to
understand any problems (and talents) you may have. Unlike
something like measles which is very easy to recognise,
another person cannot tell whether you have Asperger
syndrome just by looking at you. People who pass you in the
street will not be able to guess. This means that you can
choose which friends you want to tell. Asperger syndrome
does not mean you are not clever. On the contrary, people
with the condition usually have an average or above average
intelligence level. Therefore, any one who calls you names,
simply doesn't know as much about Asperger syndrome as you
do."
http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=1245&a=2621
Questions of the Week:
Why is it important for you (and others in your school) to
know about autism and Asperger's syndrome (even if you
don't think that you know anyone who has been diagnosed
with either one)? How can knowing about these disorders
help you better communicate with (and understand the
communication of) all people? If you (or someone you know)
were to receive a diagnosis of AS, how would you decide who
to tell?
Please email me with any ideas or suggestions. Due to increasing amounts of SPAM sent to this account, please include "QOW" in the subject line when sending me email.
I look forward to reading
what you have to say.
Cindy
aehealth@yahoo.com
Health Community Coordinator
Access Excellence @ the National Health Museum
http://www.accessexcellence.org
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